One day closer to the weekend!! WOOT WOOT!!!
I think I’m gonna make it!
Once a week, I put poison into my body.
I know you’re thinking “She drinks more than once a week”.
This particular poison is prescribed to me by my physician. It’s a chemotherapy agent, albeit a mild one. Methotrexate.
I take it in one dose, once a week. 6 tablets.
Some weeks, on the day after, I feel shiteous. Other days after I feel fine. It has been completely unpredictable.
Yesterday was my day after. I didn’t feel sick really, just super tired. Of course my condition can cause fatigue as well, but I can usually push through it.
I have an autoimmune condition called Dermatomyositis. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001842/ It is listed as a “rare disease” by the Office of Rare Diseases.
So, after work yesterday, I went to Kroger, got some veggies, came home and roasted them, then napped. I woke up from the nap, put on my pajamas and went back to bed. That was the most sleep I’ve gotten in so long I can’t even remember. Sometimes I forget to listen to my body, I didn’t forget yesterday!
I was hesitant to begin the methotrexate therapy. I was already taking a rather large dose of prednisone. More medication just didn’t seem like a good idea to me. I held off as long as I could. But I just wasn’t getting better.
In May of this year, I relented. I started poisoning myself every Monday night (which is now Monday or Tuesday, depending on the functioning of my brain) the first part of May. I was hoping to see some improvement before I went on vacation at the end of the month.
Doesn’t that sound poetic? “I poison myself every Monday”…..
I have to admit, now, 3 months later, I can tell that it is working. So well, in fact, that I am attempting to wean myself off of the prednisone. I am seeing enough improvement that I am hopeful that, soon, I can go back to being Action Girl (a nickname given to my by a friend). I miss Action Girl, she kicks ass. But only in a good way, she’s a lover not a fighter!
Keep your fingers crossed for me my friends!!!
Tonight will be a sad evening….. one of my best friends, JG, lost his father on Sunday and the services are tonight.
JG’s papa fought a long battle, as did his entire family. My heart is breaking for him, I love him like a little brother, he is such a good man.
Please send some good vibes JG’s way………….